After each question, circle how often you feel that way. Has your social life, eg with family and friends, been lessened. Line graphs for functional independence measures from. The responsibilities and challenges of caring for a loved one can place significant stress on the family caregiver. Comparison of stress experienced by family members of. Do you think your own health has suffered because you have been taking care of your relative. Carer impact the impact of a disease on a patient is an increasingly important outcome measure in medicine and healthcare. Caregiver burden was measured with the revised greek bakas caregiving outcomes scale, and psychological distress was screened with greek hospital anxiety and depression scales. The present study examined the reliability and validity of the bsfcs. The scale is designed for community living lay caregivers, not institutional care staff. Caregiver quality of life indexcancer cqolc scale 35item rating scale measuring physical, emotional, family, and social functioning burden caregiver reaction assessment cra 24item rating scale measuring burden in selfesteem, lack of family support, finances, schedule, and health caregiver strain index csi. The aim of this study was to validate the greek translation of the revised bakas caregiving outcomes scale bcos with a sample of informal caregivers of people with advanced cancer receiving outpatient palliative radiotherapy. Therefore, a distinction between the use of the terms, caregiving and caregiver, in the extant literature is warranted. Search for abbreviation meaning, word to abbreviate, or lists of abbreviations.
Psychometric testing of the revised 15item bakas caregiving. Comprehensive data from the ida project were the basis of the. Assessing the impact of caregiver outcomes on function and. Tamilyn bakas, dns, rn, faha, faanassociate professor. Following their consent, a questionnaire was sent to their informal carer. Stroke caregiver outcomes from the telephone assessment core. Caregiver burden considerably affects the lives of families providing care to people with advanced cancer. Family caregiver resilience and the important role of. An illustration of caregiver outcome based learning.
The impact of an educational intervention in caregiving. The scale was originally developed to measure life changes in family caregivers of stroke survivors, but has also been used in family caregivers of those with heart failure and a variety of other. Selected caregiver assessment measures family caregiver alliance. Home care nurses rate a familys caregiving outcomes on three scales the frail elder outcome scale, the caregiver outcome scale, and the family outcome scale using a scoring range from 1 least positive outcome to 3 most positive outcome. Further research using the proposed conceptual model and the hfcql scale is warranted. Using hierarchical multiple regression, 63% of the variance of the 12item bcos in sample no. The stroke survivors completed the barthel index and the geriatric depression scale. Caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing. The conceptual model for the study figure 1 was derived from lazaruss. Caregiver fatigue is a fast track to caregiver burnout. Further reproduction prohibited without permission. Pdf validation of the revised bakas caregiving outcomes scale in. The 10item short version of the burden scale for family caregivers bsfcshortbsfcs was developed to provide an economical measure of this variable.
Family caregivers of stroke survivors experience more depression, emotional problems, social inactivity, and general illhealth than. The most popular abbreviation for bakas caregiving outcomes scale is. The patient health questionnaire depression scale phq9 measuring caregiver. Unidimensionality was supported by factor analysis in both samples. Burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire.
Revised scale for caregiving selfefficacy steffen et al. Pdf validation of the revised bakas caregiving outcomes. Stroke caregiver outcomes from the telephone assessment. Development and psychometric testing of the bakas caregiving outcomes scale. Each item is rated on a 4point likert scale, ranging from 1 strongly disagree to 4 strongly agree. Caregiver burden, productivity loss, and indirect costs. Subjective burden is a central variable describing the situation encountered by family caregivers.
Validity and reliability of the zarit burden interview in. Telephone assessment and skillbuilding intervention for. For this part, we are interested in how confident you are that you can keep up your own activities and also respond to caregiving situations. These persons are collectively referred to as family members. Development of a brief assessment scale for caregivers of the medically ill. The bakas caregiving outcomes scale and a demographic sheet were administered to the caregivers. The new hfcql scale showed potential as a quality outcome measure in hf caregivers, and might be used to screen hf caregivers for poor quality of life. Time and difficulty of tasks provided by family caregivers. The results in this study demonstrated that the zarit burden interview is a valid and reliable instrument for measuring the burden of caregivers of pwd in singapore.
Family caregivers of stroke survivors experience a variety of negative social, emotional, and healthrelated outcomes as a result of providing care. Bakas caregiving outcome scale shows evidence of satisfactory reliability. Family caregivers, also referred to as informal caregivers, provide a level of care at home often equivalent to that of professional nurses, such as monitoring their family members acute or chronic conditions, recognizing early signs of impending problems such as. Nearly always please circle the response the best describes how you feel. A resource inventory for practitioners v in 2005, family caregiver alliance convened the national consensus development conference with 54 experts in caregiving, health and longterm care, and public policy. Crosscultural adaptation of the caregiver reaction assessment for use in brazil with informal caregivers of the elderly examined by a committee of judges, for its semantic, idiomatic, experimental and conceptual equivalencies, in order to establish a preversion brazilian cra. The kingston caregiver stress scale is a scale designed to allow a family caregiver to express the level of stress that he or she is currently feeling around the duties of dementia care.
This subjective burden is one of the most important predictors for negative outcomes of the care situation for the caregivers themselves as well as for the one who requires care. Bakas and burgener 2002 found that difficulty with carrying out caregiving tasks was a strong predictor of emotional distress and other negative health outcomes in the stroke caregiver. Talk with your physician about ways that you can enhance balance in your roles. Further functional data were acquired using the stroke impact scale sis16 11 and qol using the stroke specific ssqol scale 12 for the patient and the short form sf12v2 for the wifecaregivers, depression using the beck depression inventory bdiii, 14 caregiver burden using the bakas caregiver outcome scale bcos, 15 and marital. Click on the image or right click to open the source website in a. Caregiver burden, productivity loss, and indirect costs associated with caring for patients with poststroke spasticity vaidyanathan ganapathy,1 glenn d graham,2 marco d dibonaventura,3 patrick j gillard,1 amir goren,3 richard d zorowitz4 1allergan, irvine, ca, usa. These images are a random sampling from a bing search on the term caregiver burden scale. In fact, this stress can build up to actually cause caregiver distressa situation where the caregiver may become more susceptible to other health risks such as high blood pressure, diabetes, and increased risk of stroke. Validation of bakas caregiving outcome scale for brazilian. Request pdf psychometric testing of the revised 15item bakas caregiving outcomes scale family caregivers of stroke survivors. Validation of the revised bakas caregiving outcomes scale. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal. The scale was further shortened to a 10item scale in sample no. Short version of the burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire.
The act of the caregiver precedent is described by caregiving antecedent. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of. The original 10item bcos was improved by adding five items addressing. Join a caregiver support group eat a wellbalanced diet see your physician for a wellbeing checkup treat yourself to something fun laugh. All items except items 1, 5, 10, 17, and 20 were reverse coded in such a way that 1 implies the low to. One result of the consensus conference was the identification of fundamental principles. The 15item bakas caregiving outcomes scale bcos measures caregiver life. The bakas caregiving outcomes scale bcos is an instrument designed to measure life changes in family caregivers of persons with chronic illness. Outcome variables the primary outcome variables of the study were the proportion of family members who experienced each of the 15 potentially stressful situations and the proportion. Hiring someone to come in at night will cost a little money, but it will be significantly less than moving your loved one into a longterm care facility. Caregiver burden scale questions please, place a tick in the appropriate box.
To psychometrically test the revised 15item bakas caregiving outcomes scale bcos measuring life changes specifically resulting from providing care. Listing a study does not mean it has been evaluated by the u. The z a r i t b u r d e n i n t e r v i e w scalelibrary. Background the burden experienced by family caregivers is the most important caregiverrelated. Subscribing to this logic, caregiver and caregiving equate to the same, when in essence, the terms may represent two entirely different concepts. This manuscript examines caregiver burden among a small sample of primary caregivers of stroke patients in jamaica. The impact of an educational intervention in caregiving outcomes in jordanian caregivers of patients receiving hemodialysis. Bakas caregiving outcomes scale west indian medical journal. Bcos is defined as bakas caregiving outcomes scale very rarely. Caregiver burden is the stress which is perceived by caregivers due to the home care situation. Telephone assessment and skillbuilding intervention for stroke caregivers taskii the safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Interview and informal caregiver burden assessment questionnaire. The 15item bakas caregiving outcomes scale bcos measures caregiver life changes specifically as a result of providing care.
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